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Hello My Name is Kendra and my daughters name is Kaitlynn Hinther. This is our story. My Daughter was born c-section on Aug 21. She shares the same birthday as my sister Corrine. My parent’s house was hit by lightening and caught fire the same day she was born. Someone in the universe thought it would be great to use my parent’s house as a candle.
She was a healthy weight and height when she was born. We thought she was a healthy beautiful baby girl. The nurse was concerned about her head size that it was quite small. That is what started all the testing for us. It was constant doctor appointments. We were seeing specialist after specialist for the first few years. Before we started growth hormone, we had x-rays done of her hands. She was around 3 and they put it in layman terms for us that if someone did an autopsy of her body and did not know her age they would think she was 18 months from her skeleton structure. Kaitlynn did not start walking until she was three years of age. She did not have the muscle strength to hold her body up and she has a speech delay. She can “out win” anyone at charades. She is so sharp that if the doctor does not check her eyes or blood pressure, she will tell them what needs to be done. She has been half the size of her peers and she has a hard time gaining weight. We really noticed this when we put her in pre-school.
We started growth hormone about 2 years ago now. We have an awesome nurse (Nicole) who spent the time to explain everything with the easypod. Kaitlynn was so excited that her name shows up and she was able to pick out a new faceplate for her machine. She calls it her Beep. It was a struggle at first for both my partner Eric, Kaitlynn and I. The first two nights we all cried. I couldn't even look at Kaitlynn's face. I didn't know how we would get through this. I signed us up on facebook for a support group “life of a growth hormone deficient kid". I am glad that we were not going through this alone since all of our family members had no clue what to expect or give tips to make things easier. After the third night we started to rotate between her arms, legs, and buttocks to make the injections more comfortable for her. The first few months we gave her treats. I bought stuff from the dollar store like stickers, tattoos and spiders. She really loves spiders. She would complain sometimes and I would massage her arm or leg afterward and that seemed to help. We even have a booboo buddy that we will sometime put on her skin to help numb the area before we give the needle. It would depend on her mood.
During Christmas break Papa and Wapa were spending time with Kaitlynn. One night they wanted to have a sleep over. They had a good time and the night before was Kaitlynn's day off from the beep so Papa and Wapa had to give the injection to Kaitlynn. She helped them and we gave them instructions over the phone. They said wow, Kaitlynn makes it easy and it was easy for them to handle. They are so proud of their grandchild and how brave she is. The easypod is not scary looking at all. No mixing doses and we can adjust her needle settings.
Before the growth hormone injections she would graze a little during the day. Kaitlynn would never eat a whole meal but now holy cow she will eat more than me somedays. She doesn't eat beef but she loves chicken, fish, fruit, diary and some veggies. She will even try a new food once in awhile. She is a lot more independent in her everyday activities. Kaitlynn does not need help anymore going to the washroom. Getting dressed and some other tasks are still difficult but they are coming along. I am so glad for the easypod. No mess and changeable faceplates we wish we could get one with spiders, an octopus, pokemon or Dr. Who. The support staff at EMD have been great as well. The have really understood our financial concerns and helped us. They have been patient and been there for us from the beginning.
If it was not for the easypod, I do not think Kaitlynn would be were she is. She is catching up nicely to the other kids. In pre school and Kindergarten the kids would baby her because she was much smaller and now the kids understand she is just unique and will help her.
Just remember you are not alone and there are great people out there to help you. We take each day as it comes because life is like a rollercoaster.