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Our journey began when I was just 20 weeks pregnant when we got our first diagnosis. I had bilateral notching, and a two vessel cord…Neither of which are life threatening but on top of that I measured small for 20 weeks. I was sent to a neonatal specialist for a detailed ultra sound to find out what was going on.
Of course like any sane person (or just stupid) I took to the internet and of course PANICKED! Fast forward: passed stress tests 3 times a week, 2 ultrasounds a week and 2 doctors appoints a week (yep that’s 7 appointments a week!) to 36 weeks when my neonatal specials said the words “ok its time for him to come out now”, you see my baby stopped growing and the decision was that he would have a better chance out then in. PANIC AGAIN!
We had a midwife with us the whole journey which I must say was a blessing and she walked us through what was going to happen. We had a scheduled C-section because the baby was small and natural birth could be a lot on his little body. My Linden was perfect! Small at just 4 lbs and 16 inches long, but perfect!
We stayed in the NICU for 16 days until he was strong enough to eat properly on his own and the doctors were confident we could handle everything. Fast forward again 3 months when we got more news, my son had a growth disorder.
Once we had the diagnosis we ran with it and learned everything we could: my son was atypical, he had reflux, delayed gastric emptying, lack of appetite. We had a feeding tube placed at 1-year old and then he started getting sick: ALL THE TIME.
You see when my wee boy didn’t eat, this meant his blood sugars would plummet to a dangerous low, and we’d land in hospital every time he caught even the mildest cold. We spent over 30 days in hospital one year, prior to learning about growth hormones as a possible treatment.
We knew we wanted it for our son. We heard stories from other parents about measuring GH and water, mixing and needles. It was daunting but we knew it was for the best. The insurance “battle” was easy for us they simply said yes! We found out we were going to use the easypod and didn’t know much about it.
The device came to our house and at first glance we weren't sure how to use it. A nurse came to help us the first time we had to give our son a shot. First, my son didn’t like it he cried A LOT but for us, it was so easy. You pick up a cartridge, load it and once its placed against the skin hit the green button. The device is the same size as an iPhone but thicker, you load the needles into the device in the bottom and the needle is hidden, you or your child can’t see it. Which takes away some of the fear. There’s no measuring, no meds to mix, no needles to load…you just push a button.
So we’ve been using the easypod for 2 + years now and we’re still very happy with it. The support is great, if we have any questions they are available 24/7.
AMAZING. Thank you easypod.